Jake Ellis was diagnosed with rhabdomyosarcoma and sadly lost his battle in 2008, aged 5. Since losing their son, Jo-ann and Nick have been tirelessly fundraising in memory of Jake, raising over £200,000 and counting to support our work into rhabdomyosarcoma. Jake's parents, Jo-Ann and Nick, share their fundraising journey...
Team Jake has undertaken a huge number of fundraising events, including the annual Jake Ellis Charity Ball, London to Paris Cycle Challenge (successfully completed in just 3 days!), the Great North Run, charity Golf day and the Keswick to Barrow walk, to name but a few. The 2018 Keswick to Barrow walk (38 miles) and Conniston to Barrow walk (21 miles) had an incredible 110 Team Jake walkers! Jo-ann and her sister, Nicola have also run and completed the prestigious London Marathon in 2014, raising over £6,000!
Team Jake also enjoys huge support from the local community, with many local schools and businesses fundraising for the Jake Ellis Fund.
We are so proud of what we have achieved over the last few years. It has not always been easy, sometimes very hard and upsetting, but what has given us both strength is the massive support which continues here in our home town of Barrow in Furness.
Not only are Team Jake helping to support CCLG in finding a cure for this disease, but they are ensuring that Jake's memory continues to shine.
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News
Team Jake comes together for CCLG
Team Jake reaches an amazing £200,000!
Jake Ellis Charity Ball raises more than £8,000
Jake's 13th birthday raises an amazing £1120!
Team Jake's London to Paris cycle raises £20,000
Tackling the gruelling Keswick to Barrow
Research projects funded
Identifying the support needed by children with sarcoma
A molecular approach to predict recurrence or spread of cancer that will lead to improving outcomes for children with rhabdomyosarcoma
Understanding treatment decision-making processes in families where a child or young person has relapsed/refractory rhabdomyosarcoma
New treatments for relapsed rhabdomyosarcoma
A living review of new treatments for children and young people with relapsed and refractory rhabdomyosarcoma
Investigating a new way of treating poor-prognosis rhabdomyosarcoma
Learning to predict high-risk rhabdomyosarcoma at diagnosis to improve outcomes for children and young people
Investigating the shape of fusion genes in rhabdomyosarcoma
Fundraising pages
Text CCLGJAKE to 70085 to donate £5.
CCLG will receive 100% of your donation. You may also be charged for one text message at your network’s standard or charity rate.
You can make a donation or pay in funds raised by cheque, payable to CCLG, to CCLG, Century House, 24 De Montfort Street, Leicester LE1 7GB. Please ensure you make it clear that the donation is for Team Jake so that your donation is allocated to the correct fund.
Follow Team Jake on Facebook